Post by Angie on Oct 30, 2008 22:43:07 GMT -5
I copied and pasted the below from my site I am creating about PCOS, The site is FAR from being done, I just haven't had a lot of time to work on it yet. I will get back to it soon!
Hugs,
Angie
I had a group on MSN, with a close dear fried of mine, a fellow cyster, (and a SISTER too!!) but they decided to sell the groups to some other company that wanted to charge to have groups there. Well I didn't think that was right to have a group for free for so long then all of a sudden be charging for it. Soooo I decided to come here and start a site, and move the group to pro boards. Which is better, well not better, but with the site and pro boards we are set now.
I have been told quite a few times, " You are brave talking about your PCOS out in the open like you do." I honestly don't call it being brave, I call it wanting to get others to know that PCOS really exsists. That it isn't some made up thing. That I am not some crazy woman who is making things up just to get attention. I am tired of hospital people looking at me like I am making it up, and I am tired of telling the medical people," Well its been a while since my last period." then get the " Are you sure you are not pregnant" MAN that botherd me. I have come so close several times to saying, "Naw I don't know my own body at all, I am just seeing what you are going to say." I have also had it going from doctor to doctor and no one being able to find out what was wrong with me. I think the biggest thing that was really on my nerves was, Why no one could tell me why things were happining to me. I was always asking my regular medical doctor, "Why is my skin darker in some area's and WHAT are this nob like things on my neck, they are sooo grouse, and why do I have a period some month and then go a long time without one?" Honestly the longest I have ever gone without having a period was a full year in a half. That is the honest to goodness truth. That is just to crazy to be made up out of thin air. In August of 2006 I went to a new ob/gyn. When I told her how long it was the last time I had a period, she looked at me with wide eyes and said, are you sure you are not pregnant, I let out a chuckle because I had been so sick and tired of hearing that all the time. I then had to be a little bit of a smart @$$ and say,"Yea I have been pregnant for a year and a half" It just didn't seam to me that she should be asking me that stupid question, She then appoligised and said that she was only doing her job. I then said, " Do you honestly think that I wouldn't KNOW if I were pregnant or not? I mean what woman wouldn't feel a baby growing in side her, and for a whole year and a half?" I just really didn't see the logic in her question. She then left the room for a little second because she had to go answer a call. When she FINALLY came back into the room she sat down and said, "Well Miss Corey, to me it sounds like you have what is called PCOS, Poylcystic Ovarian Syndrome. What that is..." she then proceded to tell me what it was but I was in shuch shock that I didn't know which way was up. I then had the blood test there so that they could check to see. Well on August 14, 2006..... I got the dreaded call, I infact had PCOS!! I didn't know what to do. Well soon I was off to see a specilist, A MAN!! I thought , OK what is wrong with this picture, a man telling a woman not to worry, HA what did HE know, he didn't have ovaries, he didn't miss a period for a year and a half, or have people look at him like he was crazy when he said that he didn't have a period for that long, tell me to relax, ill relax once you can have a baby and live through what I am living through. Yes I was angry, who wouldn't be? Shortly after that I learned that I was type 2 diabetic, then after that I learned that my kidneys were pouring to much protine into my bladder, THEN I learned that I had high blood pressure, by Christmas that year I have learned a lot about myself that I really didn't want to think about any more, I just dreaded when the phone rang, I kept thinking, "what is the doc gonna say this time, that I only have so many more months to live?!?" Well the "Specialist" that I was seeing just TOTALLY ticked me off ONE to many times, and the office that I was going to told me on one trip, that I wasn't going there for my diabeaties, that I was going there for something else, then the next time after that they told me that I was, I was like OK people are you or are you NOT treating me for diabeaties, MAKE UP YOUR MINDS! Well they just didn't seem to care to much about how I felt SOOOOOOO In so many words I told them where they can stick it, and went to someone else to care for things. Life is just WAY to short to waist on people like that, and in the medical field where they SHOULD know what they are doing, it was very clear that they had NO CLUE!!
My advice to someone who is new to the whole PCOS deal. DO NOT, just settle with a doctor that you are not comfortable with. I wasn't about to and you don't need that added extra stress on your shoulders when you are already going through a nightmare to begin with. Another reason I HAD to start the PCOS Support Site and group. So others could learn that they are NOT ALONE, that we can all support one another, and that our family members and loved ones can come and read what others like yourselves are going through. So please I ask that you not go this alone, if you are feeling down and out, and that no one cares or understands you, PLEASE we fellow PCOS sufferers know. We all have been down that road, and you know it will never get any easier if you walk down that road alone, We are here for you!! So please, come and join the group!! You Need us and WE need you to come, unload to us, because belive it or not WE KNOW what you are going through!! We really do!!
Thank you for reading my story, hope to see you soon...
Love and hugs,
Angie
Hugs,
Angie
I had a group on MSN, with a close dear fried of mine, a fellow cyster, (and a SISTER too!!) but they decided to sell the groups to some other company that wanted to charge to have groups there. Well I didn't think that was right to have a group for free for so long then all of a sudden be charging for it. Soooo I decided to come here and start a site, and move the group to pro boards. Which is better, well not better, but with the site and pro boards we are set now.
I have been told quite a few times, " You are brave talking about your PCOS out in the open like you do." I honestly don't call it being brave, I call it wanting to get others to know that PCOS really exsists. That it isn't some made up thing. That I am not some crazy woman who is making things up just to get attention. I am tired of hospital people looking at me like I am making it up, and I am tired of telling the medical people," Well its been a while since my last period." then get the " Are you sure you are not pregnant" MAN that botherd me. I have come so close several times to saying, "Naw I don't know my own body at all, I am just seeing what you are going to say." I have also had it going from doctor to doctor and no one being able to find out what was wrong with me. I think the biggest thing that was really on my nerves was, Why no one could tell me why things were happining to me. I was always asking my regular medical doctor, "Why is my skin darker in some area's and WHAT are this nob like things on my neck, they are sooo grouse, and why do I have a period some month and then go a long time without one?" Honestly the longest I have ever gone without having a period was a full year in a half. That is the honest to goodness truth. That is just to crazy to be made up out of thin air. In August of 2006 I went to a new ob/gyn. When I told her how long it was the last time I had a period, she looked at me with wide eyes and said, are you sure you are not pregnant, I let out a chuckle because I had been so sick and tired of hearing that all the time. I then had to be a little bit of a smart @$$ and say,"Yea I have been pregnant for a year and a half" It just didn't seam to me that she should be asking me that stupid question, She then appoligised and said that she was only doing her job. I then said, " Do you honestly think that I wouldn't KNOW if I were pregnant or not? I mean what woman wouldn't feel a baby growing in side her, and for a whole year and a half?" I just really didn't see the logic in her question. She then left the room for a little second because she had to go answer a call. When she FINALLY came back into the room she sat down and said, "Well Miss Corey, to me it sounds like you have what is called PCOS, Poylcystic Ovarian Syndrome. What that is..." she then proceded to tell me what it was but I was in shuch shock that I didn't know which way was up. I then had the blood test there so that they could check to see. Well on August 14, 2006..... I got the dreaded call, I infact had PCOS!! I didn't know what to do. Well soon I was off to see a specilist, A MAN!! I thought , OK what is wrong with this picture, a man telling a woman not to worry, HA what did HE know, he didn't have ovaries, he didn't miss a period for a year and a half, or have people look at him like he was crazy when he said that he didn't have a period for that long, tell me to relax, ill relax once you can have a baby and live through what I am living through. Yes I was angry, who wouldn't be? Shortly after that I learned that I was type 2 diabetic, then after that I learned that my kidneys were pouring to much protine into my bladder, THEN I learned that I had high blood pressure, by Christmas that year I have learned a lot about myself that I really didn't want to think about any more, I just dreaded when the phone rang, I kept thinking, "what is the doc gonna say this time, that I only have so many more months to live?!?" Well the "Specialist" that I was seeing just TOTALLY ticked me off ONE to many times, and the office that I was going to told me on one trip, that I wasn't going there for my diabeaties, that I was going there for something else, then the next time after that they told me that I was, I was like OK people are you or are you NOT treating me for diabeaties, MAKE UP YOUR MINDS! Well they just didn't seem to care to much about how I felt SOOOOOOO In so many words I told them where they can stick it, and went to someone else to care for things. Life is just WAY to short to waist on people like that, and in the medical field where they SHOULD know what they are doing, it was very clear that they had NO CLUE!!
My advice to someone who is new to the whole PCOS deal. DO NOT, just settle with a doctor that you are not comfortable with. I wasn't about to and you don't need that added extra stress on your shoulders when you are already going through a nightmare to begin with. Another reason I HAD to start the PCOS Support Site and group. So others could learn that they are NOT ALONE, that we can all support one another, and that our family members and loved ones can come and read what others like yourselves are going through. So please I ask that you not go this alone, if you are feeling down and out, and that no one cares or understands you, PLEASE we fellow PCOS sufferers know. We all have been down that road, and you know it will never get any easier if you walk down that road alone, We are here for you!! So please, come and join the group!! You Need us and WE need you to come, unload to us, because belive it or not WE KNOW what you are going through!! We really do!!
Thank you for reading my story, hope to see you soon...
Love and hugs,
Angie
